| 1 | BBMRI-NL user Code of Conduct. |
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| 2 | |
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| 3 | The following is the Code of Conduct that users agree to abide by as an Approved User of the BBMRI-NL Collaborative Organization (CO). |
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| 4 | Failure to abide by any term within this Code of Conduct results in revocation of approved access to all datasets obtained through BBMRI-NL. |
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| 5 | |
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| 6 | BBMRI-NL projects work with sensitive data that is provided by contributing biobanks. |
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| 7 | This data is property of the contributing biobanks, and shall not be used for any analyses unless explicit permission has been granted by BBMRI to perform predefined analyses. |
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| 8 | Specifically, users will work according to the following rules: |
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| 9 | |
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| 10 | 01. User will use requested datasets solely in connection with the research project described in the approved Data Access Request for each dataset. |
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| 11 | 02. User's permission to access BBMRI-NL data is strictly personal and cannot be transferred under any circumstance. |
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| 12 | 03. User will perform all analyses solely on the infra structure explicitly approved by BBMRI-NL ensuring data security. |
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| 13 | 04. User will ensure that all data used/generated are solely accessible by the himself/herself and other members of the BBMRI-NL CO. |
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| 14 | 05. User will refrain from downloading data to any other system not approved by BBMRI-NL. |
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| 15 | 06. User is aware that all activities with regards to viewing and downloading data will be monitored at the level of individual user. |
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| 16 | 07. User will make no attempt to identify or contact individual participants from whom these data were collected. |
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| 17 | 08. User will not distribute BBMRI-NL data to any entity or individual. |
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| 18 | 09. User will adhere to computer security practices that ensure that only authorized individuals can gain access to data files. |
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| 19 | 10. User will not submit for publication or any other form of public dissemination analyses or other reports on work using or referencing datasets prior to written permission by BBMRI-NL. |
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| 20 | 11. User acknowledges BBMRI-NL in any publication. |
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| 21 | 12. Investigator will report any inadvertent data release, breach of data security, or other data management incidents contrary to the terms of data access to info@bbmri.nl |
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| 22 | |
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| 23 | I read and understand the Code of Conduct. |
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| 24 | I declare that I will act accordingly. |
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